They both think she's doing amazing! Potential discharge now Wed. Will know tonight about what test will be tomorrow. She may be going down to one seizure medicine...at least she will in the next 2 days and then will be weaned off over 1-2 weeks. We'll have many more follow-ups with our Ped and Neurology here, plus those interventions. The neurologist also suggested she didn't think there was weakness in her right leg like the OT thought...so just a difference in opinion.
In regards to funds, our pediatrician thought the fundraiser was an amazing idea. He said we won't know if she'll need some non-insurance supported therapies in the future. More will tell over the next 6 months to 2 years. So, we appreciate everyone's support and thoughts. Some therapies are more "experimental" (although totally safe since it's more psychological, not medicinal). Anyway, we'll have to be on top of our game related to these! He's a great resource too to help us navigate those pathways. Dr. Ingerowski (our ped) came to see us again today! Have I mentioned how extraordinary he is?
2 comments:
Dr. Ingerowski is great, isn't he? He's helped us with several type of issues, emergent and non-emergent. So glad he's there to help guide you guys!
Eliza
We're all praying for you guys. Lots of love!
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